It has been a long time since I took the time to visit my blog, and chat about what's going on with me.
I feel pretty good lately, I still have my bad days, the barometric pressure wreck havoc upon the limbs. Luckily, my CRPS/RSD is pretty localized to the left foot, leg and left side of my lower back.
My meds have changed as well, I've had my methadone increased, and the percocet and flexeril only get me through the rough spots. I've gotten back into the work force through Vocational Rehabilitation, and I've been working as a paraprofessional in a local Middle School. I love the job, I love helping children. I've even become the softball coach this year, though I don't run, but I can still guide the girls from the side lines. I enjoy being back in the world.
I wonder if what happens to us is that we often get diagnosed with this disease and think that it is a death sentence for us, and we no longer live, dwelling in the pain and agony of our conditions, we confine ourselves to our beds and our couches. Our bodies shutting down, becoming more painful, more tender, more burning.
My husband suffers from a chronic back condition, and he always does, keeps on doing, and he has made me the same, and so when i could stay, sit, sleep instead I clean, move and tend. Thus my body suffers, but moves. As most Doctors tell you, moving is the best thing you can do, but sometimes, and I still have those days, sometimes I just can't move. I can't tend, I can't do, and those days I am supported, and I recognize the burn and sensitivity that is CRPS.
In the end we all experience this monster in a different way. My way is not your way, and I respect that, just as I ask that you all respect my experience with CRPS/RSD.
I feel pretty good lately, I still have my bad days, the barometric pressure wreck havoc upon the limbs. Luckily, my CRPS/RSD is pretty localized to the left foot, leg and left side of my lower back.
My meds have changed as well, I've had my methadone increased, and the percocet and flexeril only get me through the rough spots. I've gotten back into the work force through Vocational Rehabilitation, and I've been working as a paraprofessional in a local Middle School. I love the job, I love helping children. I've even become the softball coach this year, though I don't run, but I can still guide the girls from the side lines. I enjoy being back in the world.
I wonder if what happens to us is that we often get diagnosed with this disease and think that it is a death sentence for us, and we no longer live, dwelling in the pain and agony of our conditions, we confine ourselves to our beds and our couches. Our bodies shutting down, becoming more painful, more tender, more burning.
My husband suffers from a chronic back condition, and he always does, keeps on doing, and he has made me the same, and so when i could stay, sit, sleep instead I clean, move and tend. Thus my body suffers, but moves. As most Doctors tell you, moving is the best thing you can do, but sometimes, and I still have those days, sometimes I just can't move. I can't tend, I can't do, and those days I am supported, and I recognize the burn and sensitivity that is CRPS.
In the end we all experience this monster in a different way. My way is not your way, and I respect that, just as I ask that you all respect my experience with CRPS/RSD.
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