Thursday, October 29, 2009

"Ain't Nothing Gonna Slow Me Down" ~ Men At Work

The song of the night is “Ain’t Nothing Gonna Hold Me Down” by Men At Work.

I just got back from Dartmouth Hitchcock Medical Center in Lebanon, NH, a long trip from the Northwest parts of Vermont. So there I was, being poked and prodded like a science experiment by yet another doctor, and was told yet again that I have Complex Regional Pain Syndrome Type I, Reflex Sympathetic Dystrophy.

“Ain’t nothing gonna break my stride. Nobody’s going to slow me down, oh, no, I’ve got to keep on moving.”

And then I learned that though I may believe that Doctor’s tossed prescriptions at me, there was in fact a reason for such behavior, and that is because the number one method to treat CRPS is with Pharmacology and physical therapy. Trying in fact to find the perfect recipe for that patient to find their “cocktail” that will provide pain relief. We are still searching for my “cocktail”. And here I thought I was always a Mojito girl, turns out I could be a Bloody Mary girl or even a Martini girl. I knew already I was a Wii girl, my body feels the pain from the Wii exercises, but my swelling goes down.

“Ain’t nothing gonna break my stride. Nobody’s gonna slow me down, oh no, I’ve got to keep on moving.”

So my symptoms were analyzed today, I felt very comfortable with my Doctor, don’t misconstrue that statement, I feel very comfortable with my local Doctors, but it took a bit of time to get there with some and not with others. I had an immediate sense of positive vibes from this Doctor, and an immediate sense that he knew what he was he was doing, he knew CRPS. Thusly, I now know that I shouldn’t expect that just because I don’t have allodynia (sensitivity to touch or clothing), but I do have hyperalgesia (severe pain when only slight pain would be expected). I have swelling, mottled skin, skin temperature change, and pretty shiny skin too. We won’t get into the pain in moving the body part, the mood swings, and of course the sleeping issues. I know to stick to treatment plan, I know what I have to do, and so….

“Ain’t nothing gonna break my stride. Nobody’s gonna slow me down, oh no, I’ve got to keep on moving.”

So what's the next stepyou ask? The nex step is to stay on the Pharmacology program,and see how respond. Continue with my physica therapy program, continue with my craniosacal therapy, take up mirror box therapy, and let nothing break my stride or slow me down...

"I got to keep on moving"

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